Define Perfect

No one, not one thing is perfect.  What does the word even mean?  My son has asked me from time to time.  I can’t say as I really understand how to answer.

And those that think they may know someone that is, typically are the furthest from what I do think perfect might actually be. The word itself gives off a negative connotation.  If you think some one or some thing may be perfect, then you are stating everything outside of that is imperfect.  Then how do we define imperfect? 

It seems as though it is associated with anything that may make others uncomfortable. Out of the ordinary is not necessarily imperfect.  It could be a beautiful display of art, something so unique.  Rather though, it is those that choose to be their ordinary selves that evoke disgust or rejection from others.

I’ve encountered this more than I would have ever like to since my son was born.  While it is to be expected that other kids can be cruel at times, I was not fully prepared to see the cruelty of the school system.  My son entered first grade happily.  He was no doubt, overly stimulated by the loud students, extroverted teachers and large building.  To amend that, I was brought in for observation and viewed a teacher rewarding my son with a light up bouncy ball when he would sit quietly.  Oh yes, let’s provide a 7 year old with more stimulation, then punish him for using it during class, in which was the place it was given to him.

From then on, the phone calls and emails from teachers, principals and counselors poured in.  Berating is the word that comes to mind.  And as a single parent with no one else to take the load, it was border line harassment.  I began providing supports for my son, had him diagnosed (Aspergers at the time), therapy, but I did not understand what could be offered by the school.  That very moment of his diagnosis, the school met with me advising they would place him in a school that suited his needs better.  No special needs coordinator or IEP, just kicked out into a school where kids were put in rooms to be screamed at as though they were in boot camp.  Metal detectors lined the entrances.  My son was horrified, scared and so was I.

I wrote the district’s superintendent.  He agreed, he was angry he was never made aware of my son and his situation and immediately got me in touch with the Special Needs coordinator who taught me all about IEP’s and support classes.  We got him out and  put him in a better environment, but the damage was done.  My son no longer could trust adults, teachers or principals.

Unfortunately, trauma takes time to work through, and as he grew into middle school, he carried that weight.  Teachers frequently report that my son “thinks the world is out to get him”.  And I frequently remind them of what he has been through.  All the while being bullied day in and day out.  Beat up, called retard and receiving death threats to the point where sheriffs provide their cell numbers in case I may need them in the future. Yet the school staff continues to ignore it all, putting the blame of my son’s “bad behavior” on him and I.  And I continue to remind them that they are not following his IEP.  That they will not see changed behavior if they cannot provide a changed environment.  Meeting after meeting, it is only when I pull in another advocate and begin to push back that his needs are ”somewhat” met. 

To further show you just how uncomfortable my son and I make the perfect people at his school, just the other day I received a visit from a social worker with allegations that I am abusive.  My son was scared and immediately stated he would never think this, of course.

The report came in that because my son wears coats, even when it’s warm outside, he must be covering up physical abuse.  They stated that he watches violent videos and his art work is disturbing.  There is no hiding the fact that my son loves horror.  And as long as he is not threatening others or himself, I am supportive of this interest.  He tells stories, creates videos and loves psychological situations, including SciFi.  He is in middle school and can certainly be awkward at times.  He has been wearing coats throughout his years in school because it makes him feel safe and keeps the germs off he says.  As soon as he comes home he takes it all off and is the typical shorts and tshirt kinda kid.  He is that disgusted by school, that he has certain clothes he won’t even touch once he is home.  He is intelligent and extremely observant.  He is imperfect.  However he is very good at reading others moods.  He understands politics and corruption.  Loves history and gaming.  He is extremely out of the ordinary, yet completely and genuinely himself.

So at the end of the day, I ask those that accuse me of being a bad parent and my son of being a bad kid….are you perfect?  I wonder if every time you see someone or something that looks different than you, acts a little odd and might even be a little sarcastic and bold, you judge them?  You tell yourself there must be something wrong with his home, his friends, his use of screens because at the end of the day, it couldn’t possibly be my classroom, my teaching, me that is causing this imperfection?

I don’t know much about the personal lives of these educators, but I do know this.  They don’t have autism.  And the one’s always looking to find things wrong with my son instead of figuring out how to make things right for him (because isn’t that their job, to work with kids and help them learn in their way) don’t have kids that can’t complete a task without zoning out.  Do they have kids at home that are so sensitive that it is a daily struggle just to get them to wash their hair or face?  Not because their kids, but because it is actually painful?  Do they know what it is like to see their kid want to talk about psychology and the study of seals more than wanting to play baseball?  Or to understand that their child needs extra time because they are slow processors?  That they are not able to answer a question within your time frame?  That they need to think and sometimes they over think, obsess and become stuck on one thing.  And if they did have these kids at home, would they not want their schools to provide these supports?  Supports such as time and patience, peace and quiet, the ability to take time to answer questions and use thought instead of being constantly berated to hurry up.   My son’s disgust for school has nothing to do with his education.  He is interested.  But if you are expected to go to a rave to learn about biology, how would you behave?  How much would you be able to absorb and learn?  Let’s throw you into a pot of chaos and then tell you to finish your assignments, not be irritable or distracted. 

I have always believed that perfection is a disgusting disguise of those who judge others.  Anyone not being genuinely who they are with expectation that others act this way as well should be defined as being perfect and held to their impossible standard.  My son and I will continue to be imperfect, lively freely with no desire to be influenced by your preconceived ideas of what a single mother and autistic son should be.  We are our own and I can assure you that we are more honest and loving towards each other than most families with two parents or siblings.  We do it our way and we will no longer apologize for not fitting in your class room.   

A Little Help From My Friends

When you’re a parent, you sacrifice.

When you’re a single parent, you struggle.

When you’re raising a child with autism, you dedicate.

When you are all of these things, you need help.

From the time my son was born, help began to diminish. From those you should have no doubts in, to those you gave everything to. But it happened.  People I believed in and loved began dropping like flies.  And soon it was just me and my son.  And for awhile that was alright and we have grown to be better than most would think when you have nothing but dead flies around you.

But soon, you find that you can’t.  And not like the “now come on Dana, you just preached to us about positivity in your last blog.”  No really, you just can’t.  No amount of reciting the Little Engine That Could is going to all of a sudden give me the ability to “can”.  It’s like saying, hey, you’re strong, I bet if you put your mind to it you could lift that parked car over there.  That is what my life is like. That is what many of you out there sharing the same enormous amount of responsibility, but doing it alone, that is what it is…..lifting a car over your head because we believed and stayed positive.  Thanks but that’s not happening.  This is real life, this is happening and  despite my cute Facebook group name “Single Parent Superheroes”, we are not that.  We are human and we cannot do this alone.

Some of you may not want to ask for help.  And believe me, I get it.  But if you can, then get over it, do it!  That parked car is not going to lift itself and you have a child to save.  Some may be where I’m at, just lacking the right amount of flies.  But I will take what I can get.  It’s not easy asking for help when you feel like you have been fighting a battle alone for so long.  And you know that you can’t just except “conventional” help, because let’s face it, you are not conventional.  I have learned that at 40, I have fewer flies (ok I’ll stop calling you that), people in my life than ever before, but I now choose wiser friends and I choose them wisely.  They are too, non conventional.  They may not know exactly what I’m going through, but they get that it’s not easy because they too are going through some messed up stuff.

So at the end of the day when you are finishing the essay you wrote to the teacher, trying to explain to them what you see in your autistic child at the moment so they can better understand.  When you are picking up that child from school after a day of constant worry of what he may or may not be doing while simultaneously trying to earn a living that doesn’t pay the bills.  While you lay your head on your pillow at night wondering if you will ever be enough to have someone to lay next to.  While you walk up to that parked car and hope no one is looking when you actually try to pick it up…..ha gotcha.  Well….at the end, just ask.  Just see.  There may be few, there may be none, but something is better than nothing and you really don’t need another broken back.

What would you think if I sang out of tune?
Would you stand up and walk out on me?
Lend me your ears and I’ll sing you a song
And I’ll try not to sing out of key
Oh, I get by with a little help from my friends
Mm, I get high with a little help from my friends
Mm, gonna try with a little help from my friends
What do I do when my love is away?
Does it worry you to be alone?
How do I feel by the end of the day?
Are you sad because you’re on your own?
No, I get by with a little help from my friends
Mm, get high with a little help from my friends
Mm, gonna try with a little help from my friends
Do you need anybody?
I need somebody to love
Could it be anybody?
I want somebody to love
Would you believe in a love at first sight?
Yes, I’m certain that it happens all the time
What do you see when you turn out the light?
I can’t tell you, but I know it’s mine
Oh, I get by with a little help from my friends
Mm, get high with a little help from my friends
Oh, I’m gonna try with a little help from my friends
Do you need anybody?
I just need someone to love
Could it be anybody?
I want somebody to love
Oh, I get by with a little help from my friends
Mm, gonna try with a little help from my friends
Oh, I get high with a little help from my friends
Yes, I get by with a little help from my friends
With a little help from my friends’
Songwriters: John Lennon / Paul McCartney

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I Have a Million Things to do Today

You wake in a fog, coming down from the work week, one day in of the short break we call the weekend.  It’s easy like Sunday morning. And if even for just 15 minutes, the time is yours.

clock

We all need a break they say and most of us rushing to make breakfast for our kids, pay the bills or fill the impossible requests for your time during said weekend don’t really take one.  But I bet you do.  Maybe you’re the one sitting on the John with phone in hand just a little too long, or your shouting “I’m going to take the trash out!” while getting in a few puffs of a cigg.  Either way, these are breaks and they are yours.

This morning it felt as though I was on vacation.  This break lasting a full 30 minutes, I had enough time to open the windows (which in my house is equivalent to a short session at a cross fit gym).  As I pulled up a bench, literally, I felt the magnificence of the outdoors coming in to my home to share it’s time with me.  Needless to say, as an allergy sufferer, it’s been a while since I’ve let some air in the house.

The morning sunlight poured in like wine from a bottle and in those minutes every sense felt fulfilled.  I haven’t even mentioned the coffee in hand with just enough cinnamon to make me aware of the slight coolness the breeze had to offer.  I could no longer see the stacks of papers in the room, the piles to be cleaned.  I couldn’t hear the voices in my head telling me how much I needed to get done today because it would be my last chance before the next weekend would arrive.  I simply sat and felt.  Then I looked up and noticed the huge clock on the wall….ah the clock, my archenemy.

The morale of this story?  Mindfulness.  It’s the time you have, no matter how short.  It’s the focus on your senses, no matter where you are.  It’s the people you are with, the breeze upon your face, the beautiful views of the countryside you probably take for granted on your morning commutes.  Take full advantage of this mindfulness each day and it will do amazing things for your patience and self control.  Soon enough the starting gun will be reminding you the weekend is over and you really weren’t on vacation this whole time.

Shuffle

Forrest Gump said “Life is like a box of chocolates”, but I beg to differ. Chocolate although may come in several forms, is mostly predictable. Sure you may get a caramel and chip a tooth or dark chocolate making you feel a bit bitter. Certainly all things life can leave you feeling, pain and angst. But that perfect silky, melt in your mouth outer shell, that chocolate, that is the beauty of life and it is found in every piece within the box. Don’t get me wrong, some may relate to the chocolate in it’s familiarity and happy ending. It really is a positive way to look at life.

Now let’s look at life, for real. I like to say music is the soundtrack of our lives. In the real world it’s as though you are playing it on shuffle. That’s right, being a single parent is much like being brave enough to press shuffle on your ipod. Now you really don’t know what you’re going to get Forrest! Most of us only keep music we enjoy, but if you are a true music lover you know you have a song, artist or album for every mood. And since you have a child you know that feeling when you are chilling to Beastie Boys and all of a sudden “I’m a Little Teapot” is blaring from your Kia and your “I’m still cool” confidence goes right out the window and reality sucks you right back in. Now that’s life. No silky melt in your mouth chocolate, just a sudden change you were definitely not prepared for.

I used to believe that life is choices, but to truly be ready for anything, you must believe that life is changes.  Just when you think you are clear for a while, Floyd comes on and reminds you that it’s a long ballad until you can catch your breath again.  The key is to accept it. Yes you all should embrace a little Floyd now and again and know that soon enough Dave Grohl will come back in to be sure you are awake.  Maybe you will be fortunate at times to come across a little Van Morrison and do a little Moondance or your heart will be in the right place to be ok with singing Adele at the top of your lungs(I don’t ever do that).  As long as you know that at any moment Zeppelin will come on and over stay their welcome.

So I say life is like a playlist on shuffle.  It will bring you challenges, but it will give you joy like no other.  It is worth waking up everyday to turn it on again and hit repeat. And remember, you are not alone.  There are people out there that still like the Eagles.